Cancer Experience Registry: An Online Research Study to Understand the Experiences of Cancer Patients and Caregivers - (Cancer Experience Registry (CER)) CER

What's the purpose of this trial?

The Cancer Experience Registry®: An Online Survey Research Study to Understand the Experiences of Those Impacted By a Cancer Diagnosis. Findings contribute toward enhancing care for patients, survivors and caregivers via programming and policy initiatives.

This trial is currently open and accepting patients.

What will happen during the trial?

The aims of the Registry are to: 1) better understand the psychosocial experiences and needs of people who have been impacted by cancer, including patients, survivors and caregivers; 2) inform the research community, healthcare providers, patient advocates and policy makers around gaps in care and the psychosocial challenges of people affected by cancer; 3) use the findings to develop and disseminate tailored (data-guided) programs and services that will address the emotional and social needs and ultimately improve the long-term quality of life of people affected by cancer; 4) link registrants to cancer related resources and programs via an online, modifiable platform; and 5) provide collaborating sites (e.g., hospitals/health networks/CSC affiliates) with aggregated reports on quality and needs of members or customers to enhance or improve quality of care.

You may be able to join this trial if you:

The following criteria is a partial list of reasons why patients may be eligible to participate in this clinical trial. Further evaluation with a medical professional is required.

Inclusion criteria:

* Have received a cancer diagnosis or have been a family caregiver or informal caregiver (i.e., a relative or friend) for someone diagnosed with cancer
* Live in United States, a US territory, or Canada
* Able to read and understand English

Exclusion criteria:

* None

Additional Trial Information

Enrollment: 15,000 patients (estimated)

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Trial Locations

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Pennsylvania

Cancer Support Community Research & Training Institute

Philadelphia, PA

Open and Accepting
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