The Myeloma Crowd is a patient-driven, 501(c)3 non-profit organization that empowers multiple myeloma patients at each step of their disease journey – from diagnosis, through education, care and on to a cure. The Myeloma Crowd offers three areas of support: 1) online and live simplified education in patient-friendly language 2) support for leading edge research for high-risk patients and 3) the use of data to solve patient problems and support research.
HealthTree is a patient-led community effort where myeloma patients own their data and merge it into a collective network with other myeloma patients. As patients enter their data into the HealthTree platform, the system educates them on personally relevant treatment options and clinical trials they can discuss with their doctors. Over time, the collective data of many patients provides more context for patient / doctor collaboration.
Patient Power® is a service led by founders Andrew and Esther Schorr, supported by team members around the world. Patient Power is committed to helping each person they touch approach their illness in a way that gives them the best chance of good health: getting smart about their diagnosis, seeking out the best healthcare providers, getting second and even third opinions on what approach to take – including, if appropriate, participating in a clinical trial, and drawing on others for support.